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Value Through
Evidence

Understanding is the first step to solving.

We generate, curate and communicate evidence to inform how rare and unmet diseases are managed and treated.  

From evidence to action, connecting the pieces, driving change for rare and unmet diseases.
Preference Research and Real World Outcomes

Trusted by patient organisations and research partners.

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Our Mission

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Our mission is to drive change in rare & unmet diseases by addressing challenges through high-quality research and data, robust analysis and actionable evidence.

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Committed to the patient

We place patients at the heart of everything we do. At the same time, we recognise that rare & unmet conditions affect a broad range of stakeholders. Our research is designed to capture these diverse perspectives, ensuring that the experiences and needs of all those impacted are reflected.

To drive meaningful change, we bring together a wide network of stakeholders; patients, caregivers, clinicians, the life sciences industry, patient organisations, and policy makers. Creating collaborative solutions grounded in real-world insight.

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How we do it

Evidence and Insights
Generation

We generate data, insights, and evidence using qualitative, quantitative and mixed methods, to gather outcomes, characterise disease burden, elicit preferences and quantify impact of rare and unmet diseases.

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Health Economics and
Data Science

We apply rigorous analytical methods to support the interpretation and application of real-world data in rare diseases. Including statistical analysis, regression, cost-effectiveness, and budget impact modelling.

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Evidence and Insights Communication

We communicate research findings through a range of formats, including journal publications, conference presentations and bespoke interactive dashboards, tailored to different audiences and settings.

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Education and 
Engagement

We engage with multiple stakeholders to educate them on the latest evidence and insights available. Including presentations, educational materials and more. 

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Who we support

We believe in providing high quality robust evidence centred around the people affected by a condition

We support Pharmaceutical, Biotechnology and Medical Device companies. Specialising in rare & unmet diseases.

We support healthcare systems and providers make decisions with high quality evidence.

Patient Organisations

We support Patient Advocacy Groups with evidence based advocacy.

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For a number of years DHT has been a strategic partner to the Haemophilia Society, a UK charity that supports people with genetic bleeding disorders.

 

Their expertise in evidence based decision making has helped us demonstrate our impact, secure funding and give people with bleeding disorders greater understanding of an access to the best treatment options available. 

Kate Burt - CEO at The Haemophilia Society

Latest News & Insights

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