Publications

Disseminating the latest evidence and insights in rare and unmet diseases.

Below are some of our latest publications, presented at conferences around the world and published in peer reviewed journals, including disease specific and health economic.

Get in touch

Our latest work and publications are available below, for our teams full list of publications please visit their ResearchGate via the links below.

Most Recent

EAHAD 25 - Intro PIVOT - Poster Update.png

2025

Morgan G, Traunter J, Morgan D, Yarnall H & Bristow S. Introduction to the UK PIVOT-vWD Study: A direct to community, cross-sectional study to capture and quantify the impact, voice and outcomes of VWD. - Abstract and Poster - Haemophilia Journal - EAHAD

- Poster

- Abstract

2024

Morgan G, Owen-Wyard A, Zdziarski P, McGeown S, and Bristow S. (2024) - A Systematic Literature Review of the research upon the Burden, Quality of Life and Economic Cost Impact of Glanzmann Thrombasthenia - Abstract and Poster - Value in Health - ISPOR Europe
- Poster
- Abstract
Morgan G & Bristow S. (2024) - A review of the recommendations & evidence gaps reported across NICE’s Early Value Assessments for MedTech. - Abstract and Poster - Value in Health - ISPOR Europe
- Poster
- Abstract
Morgan G, Citla Sridhar D, Owen-Wyard A, Zdziarski P, McGeown S, & Bristow S. (2024) - Evaluating the Burden of Glanzmann Thrombasthenia: A Systematic Literature Review to Identify Research Priorities - Abstract - Blood Journal
- Abstract

Our teams profiles

CEO

Samuel Bristow

Senior Evidence & Health Economics Manager

Emily Back

Director of Research