As healthcare systems across Europe shift towards patient-centred approaches, the integration of patient voices has never been more critical. With ISPOR EU 2024 approaching, our team at DHT.health is looking forward to discussions on the transformative role of patient-generated data and preferences in shaping health technology assessments (HTAs) and informing policy. These elements have the potential to enhance clinical and economic outcomes, ultimately driving meaningful change in how healthcare decisions are made.
Why Patient-Generated Data Matters More Than Ever
Patient Preferences: A Pathway to Personalised Care
Patient preferences—whether related to treatment attributes, side effects, or quality-of-life impacts—have the potential to make healthcare more relevant and effective. Incorporating these preferences into HTA frameworks can help ensure that treatments align with what patients value most, leading to improved outcomes and more equitable care. At ISPOR EU 2024, we’re excited to see how leading thinkers are approaching the integration of patient preferences into health assessments, helping to move healthcare closer to the needs and preferences of those it serves.
The New EU-Wide HTA System and Patient-Centred Evidence
With the EU’s HTA system set to launch in 2025, there is a significant opportunity to unify HTA processes across Europe by focusing on the clinical aspects of health technologies. This new system prioritises standardised clinical evidence in the assessment of treatments, which aims to streamline access across member states. However, it remains to be seen what role patient-generated data and preference data will play in these evaluations moving forward, given the system’s clinical focus. At ISPOR EU 2024, we’re eager to hear discussions on how patient perspectives might be integrated alongside clinical evidence, helping shape a healthcare system that balances rigorous clinical standards with patient needs and experiences.
Overcoming Challenges in Implementing Patient-Centred Data
While the potential of patient-generated data is significant, it comes with real challenges. From standardising data collection across various sources to ensuring patient privacy and data quality, integrating this information into HTAs requires collaboration and innovation. We expect ISPOR EU 2024 to provide a platform for discussing these challenges, with experts sharing solutions such as enhanced data governance and ethical frameworks for managing patient information.
Looking Ahead: Building a Truly Patient-Centred Future
As we look to the future, the importance of patient voices in health economics is only growing. By embracing patient-generated data and preferences, the field can advance towards a more nuanced and effective approach to healthcare—one that values both clinical and real-world outcomes. ISPOR EU 2024 is set to be a valuable space for these discussions, and our team at DHT.health is eager to engage with other professionals to explore how HEOR can continue evolving to support truly patient-centred care.
We’re especially looking forward to two sessions that delve into these important issues:
Monday, 18 November, 10:15 - 11:15: Should We Account for Variation in Patient Preferences in Health Technology Assessment?
Wednesday, 20 November, 08:00 - 09:00: Integrating the Patient Voice Into Economic Assessments of Health Technologies
These sessions promise to provide insights and frameworks that will inform the future of health technology assessment in Europe, and we look forward to connecting with fellow thought leaders to discuss how patient-centred health economics can create more accessible, impactful healthcare for all.